Miss pink with her new glasses

My little pink troll, everything should be pink, preferably with all the colors of the rainbow, but what can you not do for your child, of course she should be allowed to experiment with clothes and colors even though I myself am far from a color person, my colors are black, green and brown hahah. The other day she was sad that she was a human and not a mermaid, she wants to be able to breathe underwater and have a fin. I love listening to her musings, they take one to other dimensions. We were in Umeå at Avion and were going to pick up Freja's new glasses, I guess they were nice? The other pair had to be sent back because they had put her progressive frame on one eye way too far down, children don't look like us adults in glasses (progressive) but they look straight ahead so it needs to be higher up.

Then Freja found a dress in these rainbow colors and fell in love, it was the most beautiful thing she had seen, even the cat bag... so yes, of course she would get a dress and bag because I don't actually buy new clothes that often (we inherit so a lot) Tom was sitting on the floor and she waxed lyrical, Santa is magical and big in her world so that meeting made her whole day. Of course we would change directly to the newly bought dress :)

Yes, next week I start my new job, after 8 years in the village I had enough and retired as they say beautifully... hope to enjoy my new workplace despite the commute that I now get instead but I see it positively, time for reflection (own tense). I have so much to give in healthcare and the time was really right for a change, sick of having one's intelligence questioned...but this will be good I feel.

Waiting to hear from Freja's doctor who in turn would have a feedback with Stockholm/Uppsala where there are Marfan specialists.

At the risk of being annoying, I think it's terribly sad and very energy-consuming to pull all the strings myself, I don't do anything, nothing happens in healthcare and then Freja doesn't get the help she deserves.

She is sickly tired and that tiredness manifests itself in crying attacks and outbursts, so how tired and how much pain does she have in her body? No one knows and she's not a child who says anything either, well then it must have been a long time before she actually complains. She loves her preschool and being able to play, but after one day at preschool, she's completely exhausted and it's almost impossible to have anything to do with her...I'm completely powerless, I feel right now and I don't know how to think. Have spoken to the physiotherapist to get help to think correctly how I can most easily help her, she in turn would contact the doctor again.

There is two cm of snow outside, where is the snow? Want the light because the dark is terrible and hard as hell when driving a car. The snow brings light and love to the heart and happier children! Freja can't wait until she can ride a scooter :)

Christmas decorations are a bit late but it's nice to have it done and it will be so cozy at home, love stars and Christmas coziness, we also took the opportunity to paint a lantern each for the children's convention, even the roommate got to show his talents haha

For the evening's story, we read the new book about the lion who has the marfan Bakoumba, Freja thought it was good because she is like the lion with thick glasses :)

On Monday I'm going to a physical therapist for my body, especially my back which is worse than ever, mind sick pain so I'm forced to take painkillers every day basically plus right now I have pain from head to toe, from the neck to the bottom of the feet and out in the fingers, I guess the weather makes the pain worse now but it's miserable and something I neither have time nor energy for...it also tires me out so much. Still in line for investigation...does it have to take 40 years to get help with what is wrong with my body? Sick! Been in pain for as long as I can remember back to childhood...but but, bite the bullet and walk on as I always say, refuse to be a victim of my pain!

Well, today is Thursday and tomorrow is Friday, so a new day where we'll see what that day has to offer, maybe I actually got smarter in a day, we'll see :)

Love and respect

Petra